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Mysterious Disease. One Wild Time.
This site was born out of our personal journey navigating the tricky genetic disorder known as Marfan Syndrome.
We noticed there was lack of good and localised information for Malaysia and wished to fill this gap and help our fellow men and women working through Marfan.
Truth and Myths explained in "Sandwich Style". Essential to set you on the right foot
Service Providers NGOs, Research groups etc. that could give you that edge to success in handling Marfan
Lived experiences and testimonies: Have a look at some helpful things fellow patients have encountered.
See a short video here to gain some understanding